Eurolight Cluster Survey: help us in filling in the online questionnaire!

23 April 2012
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What is the purpose of the study?

Your participation in this Cluster Headache survey is for the benefit of yourself and other cluster headache patients. The study aims to evaluate the physical, emotional, socio-economic impact of cluster headaches as well as the disease-management satisfaction. The results will help to have a better understanding of cluster headache as a serious health problem and to assess the burden of cluster headache. The obtained information will contribute to evaluating the needs for an optimal disease management and ultimately improving cluster headache services and quality of life. The data will be used for publications in lay and scientific literature as well as reports to the European Commission

To whom is the study addressed?

The study is addressed to all Cluster Headache patients. It is completely up to you to decide if you would like to participate. By accepting to fill out the online questionnaire, you are taking the opportunity to help improving quality of life and headache services for cluster patients.

What do you have to do?

If you agree to participate, please complete the online questionnaire as soon as possible. Filling in the questionnaire will take about 15-20 minutes you will be automatically guided through and if you would like to correct some answers you can always do so. When you are finished just press 'save and send '

Should you have any questions or need more information about the study or the questionnaire, please do not hesitate to contact eurolight-cluster@crp-sante.lu.

What is the level of privacy?

The information you provide us with will be confidential. Any possible personal data will at no time appear on the database. The data will only be used for medical research and will be analysed strictly anonymously and confidentially by using an anonymous code which doesn't allow identifying.

The encoded questionnaire will not be disclosed to any third part and will be kept securely throughout the duration of the study, and only the researcher will have access.

Languages

The questionnaire is available in the following languages. Please choose the one you prefer:

Any questions?

If you need more information about the study or if you have difficulties in answering questions, please do not hesitate to ask for assistance , you can contact us : eurolight-cluster@crp-sante.lu.