Indicators Chosen

27 October 2007
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Indicators will be used to verify attainment of specific objectives:

  1. At EU level principal scientific and patient's organisations refer and link to the EuroLight' website and disseminate material and information on headache disorders referring to the information resulting from the Eurolight project.
• Each participating patient organisation will send at least 1 newsletter about the project to their respective mailing lists.
• The EHF will report once a year in their EHF-newsletter about EUROLIGHT
• 6 newsletters will be published on the EUROLIGHT website and send to all the partners
• The EHA will raise awareness about EUROLIGHT on their website and will link it to all patient organisations.
• 3 scientific publications will be published in peer reviewed journals. Project reports about prevalence, impact and indicators; consensus paper about burden and impact of headache disorders on patients, disease-management, socio-economic aspects of headache, recommendations of higher standards of care will be published in peer reviewed journals.
• National patients' and scientific organisations will raise awareness about the project on their website and via other PR tools.
  1. The Consensus conference "Impact of Headache in Europe", supported by EHA and EHF as a special event in their European Conference, will be attended by at least 50 the PSC and Advisory Board members, and will be extended to policy makers, representatives from the scientific community, statistics organizations and international organizations including WHO-Europe and OECD, Patients' Associations, NGOs, from pilot countries as relevant stakeholders. A press conference will be organised for the consensus meeting.
  1. Selected information on headache published in the EU and worldwide will be collected from the health authorities of pilot countries and from the main organization active in compiling information on headache disorders at European level, for example ECHI, the European Headache Alliance and European Headache Federation, the European Brain Council. Two reports will be prepared, one on prevalence (month 3) and one on impact (month 4). Both reports will be prepared for scientific publications.
  2. The indicators used in surveys specifically or partly on headache disorders by the organisations collecting statistics on health (ECHI, WHO) are evaluated, as well as the available surveys covering headaches in whole or part conducted in pilot EU countries and agreement is reached based on the definition of indicators (month 5).
  3. A module on headache disorders is developed, ethically approved, locally adapted and translated (month 10).
  4. An electronic tool is developed for module compilation/transfer (month 12), 40 patients in each of the 6 countries complete the module twice, country specific and general reports are prepared, modules scientifically validated and proposal with module produced (month 15); a final module is developed (month 18) and approved by PSC and AB (month 18).
  5. All material for recruiting is produced and sent to the pilot countries (month 20), patients in Lithuania are recruited for the prevalence survey (month 22), a minimum of 3500 prevalence modules, electronically transferred to Luxembourg (month 24), patients are recruited for the impact pilot survey in 9 countries, except Lithuania (month 23), patients are recruited for the impact pilot survey in Lithuania (month 25), a minimum of 500 compiled impact modules in 10 pilot countries, electronically transferred to Luxembourg (month 28).
  6. The prevalence report for Lithuania is prepared (month 29) statistical general and country specific descriptive statistical report is prepared (month 31); the burden and impact of headache on patients, disease-management and socio-economic aspects are assessed for each pilot survey country, with an overall evaluation for all countries, on the basis of the relevant indicators included in the module. General report of burden and impact, disease-management and socio-economic aspects is prepared (month 33).
  7. At country level and overall for all pilot countries recommendations on higher standards of care of headaches are finalised in reference to the existing evidence in the literature, based on a systematic review of good quality and based on the consensus of experts in the absence of evidence existing by (month 35). During the Consensus conference, (month 36) the recommendations will be discussed by relevant stakeholders and recommendations of effective response to headache disorders will be forwarded to the working panels set up by the European Headache Federation and by the WHO Global Campaign to Reduce the Burden of Headache Worldwide to produce guidelines of headache management for Europe and organization and standards of headache services in Europe.